tag:blogger.com,1999:blog-5173945383482633147.post3724972224318450193..comments2023-10-21T03:12:27.671-07:00Comments on MagogoS's Musings:I'm Still Changing: Good News, Bad NewsMagogo's Musings, toohttp://www.blogger.com/profile/09282188854825790599noreply@blogger.comBlogger30125tag:blogger.com,1999:blog-5173945383482633147.post-11213060552336941252004-09-01T06:30:00.000-07:002004-09-01T06:30:00.000-07:00Bless you Margo :) I to again know your pain, I wa...Bless you Margo :) I to again know your pain, I was told 4 yrs ago I showed signs of precancerous cells and I have never been back to that doctor. Every time I make an appt. anywhere I get no where no answers. I to just want to know :) I pray that your feeling better today and today's appt. goes 100% better. You are in my prayers Margo ((((((((BIG HUGE SNUGGLY HUGS)))))))) ~~Angela~~Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5173945383482633147.post-30759968692909415292004-09-03T09:54:00.000-07:002004-09-03T09:54:00.000-07:00Have they investigated fibromyalgia? It is a chron...Have they investigated fibromyalgia? It is a chronic pain and fatigue disease. Some doctords do not recognize it but it is real. They try to say it is in head. Thank you for your visit. I will be putting this one on alerts.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5173945383482633147.post-8893359141664961182004-09-21T13:35:00.000-07:002004-09-21T13:35:00.000-07:00dear margo; please know that I too ;understand ---...dear margo; please know that I too ;understand --------been there --------- everheard of '''STIFF-MAN'S SYNDROME?-------- PAINFUL -SPONTANEOUS MUSCLE CRAMPING----FROM NECK TO SOLES OF FEET--------THE SOLUTION? I;M QUOTING------------- ;;IT'S AUTO -IMMUNE; ORPHAN DISEASE''----DON'T REALLY KNOW MUCH ABOUT IT ==UNQUOTE-I TOO WAS IN THE MEDICAL FIELD ---------I THINK THAT MAY KINDA BE A HINDERANCE -THEY EXPECT US TO '''JUST DO THE BEST YOU CAN ---------REST&RELAX ''/ WELL' I RETIRED AT 60 AFTER 35 YRS. NURSING &THE PAINS &CRAMPING HAVE LESSENED -------FROM 4-5 DAYS A WEEK ----TO 2 -3 -NNEURO. GUYS WANT TO MEDICATE WITH RELAXERS' [[SLEEP YOUR LIFE AWAY]-DOGGONE IT IS EXASPERATING =GOOD LUCK TO YOU .Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5173945383482633147.post-18518479234441980082004-09-21T14:40:00.000-07:002004-09-21T14:40:00.000-07:00YOU DON'T STATE EXACTLY "WHAT" PAINS...YOU DON'T STATE EXACTLY "WHAT" PAINS YOU BUT SINCE YOU MENTIONED ARTHRITIS,I WILL TELL YOU WHAT HAS MADE A 200% DIFFERENCE FOR ME<br>GLUCOSAMINE(1500 MG)CHONDROITIN(1200 MG) 2X's DAILY<br>EVERYONE THAT I HAVE TOLD THIS TO HAS TRIED IT AND SEEN A VAST IMPROVEMENT<br>I BUY THE STORE BRAND AND WHEN THEY HAVE IT ON SALE I STOCK UP<br>MY HANDS WERE DRAWN UP LIKE A CLAW AND PAINFULL (NOT NOW)<br>I HAVE THREE CRUSHED DISCS IN MY BACK (VERY LITTLE PAIN NOW)<br>MY KNEES WOULD SNAP AND POP AND BE REAL PAINFUL(THEY AREN'T NOW)<br>I WOULD WAKE UP WITH A STIFF NECK AND KNEW I WOULD GET A MIGRAINE THAT DAY(HAPPENS LESS NOW)<br>MY AGE IS 54 SO I GUESS I WAS GETTING OLD BEFORE MY TIME!!<br>HOPE THIS HELPS YOUR PAINS<br>IF IT DOES TELL ALL YOU KNOW ABOUT THIS """MIRACLE"""<br>I DO!!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5173945383482633147.post-7993673629747886592004-09-22T04:55:00.000-07:002004-09-22T04:55:00.000-07:00I know the feeling. I hurt all the time, especiall...I know the feeling. I hurt all the time, especially in the mornings. I too was tested for rheumatoid arthritis and was found to be negative. I have tried glucosamine and chondroitin for six months...no relief. I now take celebrex to manage the pain but am not happy about the long term effects of rofecoxib. I suspect I may be dealing with fibromyalgia but cannot get confirmation. I am forty-nine years old and I feel ninety. I do know that adequate sleep is crucial...without it symptoms are far worse. We must keep asking questions and keep searching for answers. Someone out there understands the reality of this mysterious problem and knows this is NOT all in our minds. It is posstble that we may also be suffering the effects of CHRONIC FATIGUE SYNDROME. which mimics the symptoms of fibromyalgia. I will pray for you and hope that if you find help, that you will share with all of us who hurt too. Best of luck.<br><br>Robin in North DakotaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-5173945383482633147.post-57713614300545322112004-09-22T07:54:00.000-07:002004-09-22T07:54:00.000-07:00Someone else mentioned this but I wanted to reiter...Someone else mentioned this but I wanted to reiterate this to you Margo. You most likely have Fibromyalgia and it is indeed painful. Their are definate trigger points in fibro. Get on the internet and look it up, then call and find out if a Doctor treats it before going. There is no cure, but just having your feelings validated and to know you're not crazy helps. The main trigger points are in the elbow. across the back of the shoulders, the lower back from hip to hip, the front neck bones and knees. Social Security now recognizes Fibro as a legitimate disability. DO MORE RESEARCH>Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5173945383482633147.post-32800451968457201072004-09-22T14:35:00.000-07:002004-09-22T14:35:00.000-07:00Hi Margo,I wrote a comment on the Sunday Outing pa...Hi Margo,<br>I wrote a comment on the Sunday Outing page. In case you don't get it here it is again. What you are more than likely suffering from is Fybromyalgia. The AMA has finally realized that this is indeed a real disease. No cure yet, but now that it's recognized they may acually try to find a cure. Try to find a physician in your area that is familiar with the condition. Check out the sights on Google for Fibromyalgia info. Best to you from a sister in pain.<br>RebeccaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-5173945383482633147.post-57619818409583862642004-09-22T17:55:00.000-07:002004-09-22T17:55:00.000-07:00HI Margo. I know ur pain. i've been to 3 arthr...HI Margo. I know ur pain. i've been to 3 arthritis doctors plus infectious disecese doctor ,they now tell me it's fibroyalgia...i was a persom who could rip a house apart in a day, now....pain, always tired 46 yrs old thay put me on celabrexso i'll see how it goes..good luck to uAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-5173945383482633147.post-90350647904420843302004-09-23T09:35:00.000-07:002004-09-23T09:35:00.000-07:00Hello Margo,Have you tried Physical Therapy? I wor...Hello Margo,<br><br>Have you tried Physical Therapy? I work in a Physical Therapy office and see cases like yours all the time and a lrge percent ofthose cpoming in leave feeling better. Ask your MD about it on your next visit.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5173945383482633147.post-48312196987954829592004-09-23T10:46:00.000-07:002004-09-23T10:46:00.000-07:00i know how you feel.if i could find somethig to ma...i know how you feel.if i could find somethig to make me just function iwould be so happy. i'm an amputee for 2yrs. sometimes i'm in basic denial then all the sudden it hits hard my friend says i keep too many emotions at bay.now and then i do let off a primal scream, though, i also had 5 staph infections and heart attack. one set back after another,pain,pain and more pain. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5173945383482633147.post-58979370158934088912004-09-23T15:18:00.001-07:002004-09-23T15:18:00.001-07:00Readingyour account is like reading a diary I have...Readingyour account is like reading a diary I have written for too many years.Yes ,my sed rate is up.No,thereis no Rheumatoid factor in my blood work. I would give anything for a diagnosis of this chronic pain I have had for so long. I become less active each year . I often wonder if my children believe me when I describe the pain I am in. I mention it less and less and have given up hope that this pain wil ever leave. I certainly know how you feel if that helps any.<br><br><br><br><br><br><br><br><br>plato 35000Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5173945383482633147.post-51100426672324598952004-09-23T15:18:00.000-07:002004-09-23T15:18:00.000-07:00Readingyour account is like reading a diary I have...Readingyour account is like reading a diary I have written for too many years.Yes ,my sed rate is up.No,thereis no Rheumatoid factor in my blood work. I would give anything for a diagnosis of this chronic pain I have had for so long. I become less active each year . I often wonder if my children believe me when I describe the pain I am in. I mention it less and less and have given up hope that this pain wil ever leave. I certainly know how you feel if that helps any.<br><br><br><br><br><br><br><br><br>plato 35000Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5173945383482633147.post-50195468937332879102004-09-23T21:33:00.000-07:002004-09-23T21:33:00.000-07:00Bless all of you out there cursed with constant un...Bless all of you out there cursed with constant unrelenting pain. What do you find most difficult to tolerate, the pain it's self or the fact that when you try to explain to others ( including medical personel) you often get the eye rolling effect? I have suffered with back pain since high school. I was born on a farm and a tomboy to boot and I admit I abused my body. there was over a year that I worked, on my feet with no such thing as a break 96 hours a week. I worked in a beauty shop 6 days a week and had 30 minutes to get to my night job as a bartender. I had to board out my two boys that I was raising alone. Both my boys had birth defects. They were correctable thank God but I had no insurance or child support and I was to proud to go on welfare therefore I worked it off. I have found my first hope in 30 years at " Center for Pain Management" in St. Louis, Mo. I still have some pain but is reduced and I'm still in treatment. I thank God and hope the best for you.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5173945383482633147.post-18309075866481556482004-09-24T14:09:00.000-07:002004-09-24T14:09:00.000-07:00Regardless of orign of pain/cause....the effects a...Regardless of orign of pain/cause....the effects are devastating to say the & my fibromygia may never improve, The pain is unbearable at times... I cry alot. Sooooo, focus on getting your mind off your self and distract yourself as much as possible. I try to be positive, but am also a realist. I like the phrase,"Well, it won't kill you, but it sure will make you wish you were dead!!!!"<br>I've done alot of alternative therapies, triggerpoint injections, PT, meds, hydrotherapy, hypnotherapy, healing touch, medical massage, counseling, etc., etc., etc.!!!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5173945383482633147.post-15687780981463408432004-09-24T17:31:00.000-07:002004-09-24T17:31:00.000-07:00thank you for telling your story. i to am having u...thank you for telling your story. i to am having unknown pain and a new dr that is taking me off pain meds. now how will this story end. i do hope you find help. hugs from butterflyxo79Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5173945383482633147.post-23780608915991870802004-09-25T17:33:00.000-07:002004-09-25T17:33:00.000-07:00Margo... have they checked you out for polymyalgia...Margo... have they checked you out for polymyalgia rumatica?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5173945383482633147.post-60491455333428943362004-09-25T20:00:00.000-07:002004-09-25T20:00:00.000-07:00Margo,I also have many ahes & pains. One neur...Margo,I also have many ahes & pains. One neurologist did a spinal puncture and found my pressure to br 260. it should be 150, so he withdrew enough fliud down to normal and mny pain went away within 24 hours. The fluid showed too many white blood cells and I had numerous tests for cancer (all negative) and their best guess was a viral infection. But I have had two rheumatologists diagnose me with fibromyalgia and there seems to be a myriad of pill mixtures, and finding one that works for you is trial and error. You have to find a doctor that recognizes fibromyalgia and has a clue asto help you. Also only you know how your body feels and reacts to different meds. GOOD LUCK!!!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5173945383482633147.post-39147535598263226182004-09-26T10:30:00.000-07:002004-09-26T10:30:00.000-07:00Dear Margo:Do not giveup, you are not crazy. If a...Dear Margo:<br><br>Do not giveup, you are not crazy. If all else has been ruled out than unfortunately or fortunately you may be suffering from fibromyalgia. I say unfortunately because many doctors do not yet recognize this but it is in fact a real syndrome. The best thing that I feel you can do is try to find a doctor most often a rheumatologist who is familiar with fibro. Then proceed, counseling often helps to better understand and cope. I have lived with this for many years and still have difficulty accepting the fact that I cannot do what I want to do and I am tired of always being "sick". Many people do not understand, but I am beginning to learn that is their problem. Take care of yourself and do not give up. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5173945383482633147.post-13458993608464915282004-09-26T16:10:00.000-07:002004-09-26T16:10:00.000-07:00Hi, I too went through many, many drs. & so m...Hi, I too went through many, many drs. & so many tests that I can't count or even remember, plus steroid injections only to finally after tree yrs. of this to be told I have VERY CHRONIC FIBROMYALGIA!!!! IT IS PURE HELL EACH & EVERY DAY OF MY LIFE. I've now had this syndrome for 8 yrs. & I have gotten worse with the pain, but like another said on this.........YOU WON'T DIE FROM IT, BUT ALOT OF TIMES WISH YOU COULD!!! The pains are unexplainable to describe, ONLY THAT ITS A HORRIBLE PAIN THAT NEVER GOES AWAY! I am on : oxycottin, celexa, vioxx, lipitor,klonopin, & even have a glycerin solution just to have bowel movements! I PRAY THATS NOT WHAT YOU HAVE, ITS ONE TERRIFYING SYNDROME THAT EFFECTS NOT ONLY YOU, BUT YOUR SPOUSE & YOUR WHOLE FAMILY. Your pains don't show & many people don't believe anything is wrong & ITS ALL IN YOUR HEAD!!! I TRUELY PRAY YOU DON'T HAVE THIS & THAT YOU GET SOME HELP TO GO ON WITH YOUR LIFE IN LESS PAIN! GOD BLESS YOU ALWAYS.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5173945383482633147.post-52096473437155059562004-09-27T08:24:00.000-07:002004-09-27T08:24:00.000-07:00Hi , Sorry to hear about your problem wit the med...Hi , <br>Sorry to hear about your problem wit the medical world you have all the symptoms of fibromyalsia Ive done all your about to yuo need to find a dr. that believes in this first my sed rate is always up and that is a good tell tell sign mostly there is only pian management but some of the sufferers of this horrible disease have found theres is cause due to sever allergy to preservitives like msg<br>if you can find a good natural path dr in your area they may be able to help <br>unfortunatlly for me I was not that lucky if you arent suffering from the allergy <br>form contact me I may be able to guide you a little. dont give <br><br><br> a friend in pain K. H.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5173945383482633147.post-55002113621484148052004-09-27T22:43:00.000-07:002004-09-27T22:43:00.000-07:00 My apologies regarding your uncomfort, but more... My apologies regarding your uncomfort, but more so for the lack of knowledge MD's have about Fibromyalgia (FM)!! I am only 21 but went through about 4 years of intolerable uncomfort before learning about FM, i would get very upset at every doctor who'd test for arthritis or lupus then tell me i didn't have either and refer me to a psycologist. Through my own research I heard of FM and all its many side-kick ailments (IBS, Rhenouds, Chronic Fatigue ect.) , and also learned of many helpful forms of treatment. <br> The main thing to remember is that there are so many suggested types of treating FM, and right now no one thing is proven the most effective. Do whatever makes you feel the best, whether it be acupuncture, chiropractic care, water aerobics and specific diet, massage and herbs, ect. . <br> I have a subscription to a magazine called ' Fibromyalgia Aware' which is a wonderful source of info and support. (They also have a web site www.FMAWARE.com ). Personally I dont believe that prescription meds will benifit you, one method is to correct sleep which leads to a habit with sleep aids, the other is to boost energy which does the same with stimulants. You may at times know more about it than your doctor but find one that is open to your thoughts rather than just telling you things. Good luck and know that you are not alone at all with this. JMGAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-5173945383482633147.post-22073321695809152892004-09-28T01:08:00.000-07:002004-09-28T01:08:00.000-07:00HELLO, DID YOU GET CHECKED FOR LUPUS, MS, ETC.I CA...HELLO, DID YOU GET CHECKED FOR LUPUS, MS, ETC.<br>I CAN RELATE TO YOU BECAUSE I AM IN CHRONIC PAIN.<br>EMAIL ME HV253<br><br>SENDING YOU BLESSINGSAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-5173945383482633147.post-34848293934081513922004-09-28T01:09:00.000-07:002004-09-28T01:09:00.000-07:00HELLO, DID YOU GET CHECKED FOR LUPUS, MS, ETC.I CA...HELLO, DID YOU GET CHECKED FOR LUPUS, MS, ETC.<br>I CAN RELATE TO YOU BECAUSE I AM IN CHRONIC PAIN.<br>EMAIL ME HV253<br><br>SENDING YOU BLESSINGSAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-5173945383482633147.post-16003725461864538312004-09-28T08:53:00.000-07:002004-09-28T08:53:00.000-07:00Please get a test for Lyme disease from a Lyme lit...Please get a test for Lyme disease from a Lyme literate doctor. The titer test is useless. I went undiagnosed for 8 years, before having a western blot test, which gave the diagnosis. I spent 10 weeks on IV antibiotics, and then bi-cillin shots, and then oral. Before that, I was diagnosed with stiff man syndrome, or "I don't know", very frustrating. I still take pain meds, celebrex, etc., but it's better than before. Not CONSTANT pain, every day now. The muscle cramps are horrible. No one understands those. I wish you the best of luck, and I know your pain is REAL! Mine began in 1989 with a muscle spasm in my neck. After the third one, I couldn't breathe. I could go on and on, but I think you get the picture. God bless you.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5173945383482633147.post-8321197461666897352004-09-28T10:22:00.000-07:002004-09-28T10:22:00.000-07:00Hi Margo,I can truly symphathize with you. I post...Hi Margo,<br>I can truly symphathize with you. I posted my life at this site http://www.angelfire.com/ny/lymedisease/index.html. It's what I went thru in trying to find a diagnosis for what I was feeling. It took me many, many years. To this day, I still suffer the damages of Lyme disease. As Tawny2121 suggested, I would definately demand a Western Blot test done to suspect or rule out Lyme disease. <br>You can go thru this list of symptoms of Lyme to see if the pattern fits.<br>http://www.ilads.org/burrascano_1102.htm scroll down to Symptoms List.<br>I wish you the best of luck.<br>Regards,<br>PatAnonymousnoreply@blogger.com